Grace continues to do well in the NICU and she is off the heat lamp and they have taken her off of some of the more intensive monitoring that they often do with babies who are premature and have medical problems.
It is amazing that the body can adjust for a long time to a low heart rate and complete heart blockage. Her oxygen level continues to be at or close to 100%, she is eating well and has good color. She has a slight rash but it does not seem to be associated with the Sjogren's or the neonatal lupus (which is a skin rash we will be looking for because it is also associated with Sjogren's antibody.). It is just plain-old newborn baby rash.
We don't know for sure when Grace will be able to come home. It could be as early as this Sunday or it may be a week or two. What it is most dependent on right now is not the heart condition which is doing fine, but on how well she eats and her general overall health.
Dave
SDG
1 comment:
Keep the updates comin'. I check back here every morning!
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